International collaboration to impact outcomes for rare cancers: The experience in Sarcoma
02 Nov 2022
Join visiting international experts Dr Alessandro Gronchi and Dr Silvia Stacchiotti to gain an understanding of how international collaboration contributes to patient outcomes in rare cancers.
Together they will explore how collection of retrospective and prospective data contributes to a better understanding of rare cancers and, how large datasets are fundamental to improve knowledge, generate hypotheses and build evidence to test, whenever possible, in clinical trials.
Researchers, clinicians, and health care providers recognise that working together through international collaboration across rare cancers is the most effective path forward to improve treatments and outcomes.
Sarcomas are a broad range of cancers, with many types that are ultra-rare and poorly understood. International collaborations between centres have led to an unprecedented collection of retrospective and prospective data and the successful recruitment to randomised trials, which is fundamental to improving knowledge, generating hypotheses and building evidence for testing.
You will hear how international collaboration is critical to the study of Sarcomas. The themes discussed are applicable to anyone interested in understanding rare cancers.
Chairs
Associate Professor David Gyorki
Research & Education Lead, Melanoma and Skin Cancers
Consultant Surgeon, Peter MacCallum Cancer Centre; Consultant Surgeon, Austin Health
Associate Professor Jeremy Lewin
Research & Education Lead, Sarcoma
Honorary Clinical Associate Professor, the Sir Peter MacCallum Department of Oncology, University of Melbourne; Medical Oncologist, Peter MacCallum Cancer Centre
Program
| Presenter | Topic |
| Associate Professor David Gyorki | Welcome and introductions |
| Dr Alessandro Gronchi | Making progress through collaboration: the case of TARPSWG |
| Dr Silvia Stacchiotti | Ultrarare Sarcoma working group |
| All presenters | Q&A session |
| Associate Professor David Gyorki | Closing statements |
Session One
-
Associate Professor David Gyorki
Welcome and introductions -
Dr Alessandro Gronchi
Making progress through collaboration: the case of TARPSWG
Select play to watch the video below
Session Two
-
Associate Professor Jeremy Lewin
Q&A and Introduction -
Dr Silvia Stacchiotti
Ultrarare Sarcoma working group
Select play to watch the video below
Presenters
Dr Alessandro Gronchi
Chair Sarcoma Service - Department of Surgery, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano
Alessandro Gronchi MD runs the Sarcoma database of the National Cancer Institute, which gathers clinical and biological information on over 9000 patients affected by soft tissue sarcoma (STS), desmoid-fibromatosis (DF) and GIST, treated over the past 3 decades in Milan. He is involved in all institutional research activities on sarcoma, which include neoadjuvant therapies in extremity and retroperitoneal sarcomas, new targets for specific STS subtypes, different telomere maintenance mechanisms in STS subtypes, genomic characterization of DF and mechanisms of resistance to therapy in GIST. He is the Principal Investigator of several Italian and International trials on STS, DF and GIST.
Dr Gronchi is one of the initiators of a Trans-Atlantic collaborative effort on retroperitoneal sarcoma (Trans-Atlantic RetroPeritoneal Sarcoma Working Group, TARPSWG), which involves over 50 institutions worldwide. Dr. Gronchi has authored more than 320 scientific publications, and serves as Associate Editor of the Sarcoma Journal, Clinical Sarcoma Research, Tumori Journal, Journal of Surgical Oncology and Annals of Surgical Oncology.
Dr Silvia Stacchiotti
Medical Oncology, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano
A medical oncologist, Dr Silvia Stacchiotti has a lifetime professional dedication to patient care and research in bone and soft tissue sarcoma (STS), and gastrointestinal stromal tumours (GIST). She works in the Adult Mesenchymal and Rare Tumor Medical Treatment Unit, Cancer Medicine Department. at the Fondazione IRCCS Istituto Nazionale Tumori (Milan, Italy) where she is involved in all institutional research activities on sarcoma, with a special focus on ultra-rare sarcomas. Her works focuses on the identification of new treatments and treatment modalities for adult patients affected by sarcomas, starting from the localized to the advanced phase of disease.
She is the current president of the Italian Sarcoma Group (ISG), the Italian scientific society for research and care of all ages sarcoma patients, and the current treasurer of the Connective Tissue Oncology Society (CTOS), the international scientific society for sarcomas. She is the faculty coordinator of the Sarcoma group of the European Society for Medical Oncology (ESMO) and the subject editor of the ESMO guidelines committee for sarcoma and GIST. She is the chair of the systemic therapy subcommittee of the EORTC Soft Tissue and Bone Sarcoma Group. She is included in the list of European Medical Agency (EMA) external experts. She is member of the advisory boards of Alleanza Contro il Cancro (ACC) and of the Federazione Italiana Gruppi Cooperativi (FICOG).
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